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EK's STAR LOG
CATEGORY ARCHIVES:

The Autism & Me Squidoo Article

An Autistic Person Speaks Out On
What It Is REALLY Like To Live With Autism

How Disgusted She Is With Asperger's People Pretending To Have Autism

And Why Authors Who Write An "Autistic" Character With Asperger's Symptoms Are Doing More Harm Then Good

The 10th Anniversary Return EelKat's Biggest "Big Lens"

Autism & Me
A Plea To NaNoWriMo Overachievers:
If You're Gonna Write Autistic Characters,
Then Stop Research Asperger's And
Start Researching Autism For A Change!

As has been requested (endlessly) EK's Star Log is returning to the internet. You can still read the original archive here... https://eelkat.wordpress.com 

The reason you couldn't find it is because I set it to private un-index mode, meaning it no longer shows up in Google search results and can only be accessed by a direct link.

Meaning, if you didn't have the url for it, no amount of searching for it would tell you how to find it. Anyone who had the url could still access it though.

I had set it to private September 23, 2013, intending to move each page here to EelKat.com... however, November 14, 2013, after only moving about 30 pages, I was beaten up and left paralyzed for 5 months, then spent 18 months relearning to walk. I am still crippled and have limited mobility.

Below is one of the blog posts that originally appeared on EK's Star Log. The original articles are still online but no longer indexed in Google. Links to the original article, are included with this post, as is the original posting date. Clicking the links will take you to the original site, where you can see the old Space Dock 13 website still online. Space Dock 13 as it looked when hosted on WordPress from 2003 to 2013.


By EelKat Wendy C Allen

Autism & Me: The Squidoo Lens

A Plea To NaNoWriMo Overachievers: 
If You're Gonna Write Autistic Characters,
Then Stop Research Asperger's And 
Start Researching Autism For A Change!

"Can anyone tell me how to write characters with autism while avoiding stereotypes? Thank you."

Here is my response to a question from the NaNoWriMo forums on avoiding the stereo types when writing about characters with Autism:

"Can anyone tell me how to write characters with autism while avoiding stereotypes? Thank you."

My response, resulted in a 500+ page non-fiction book on living with autism. 

The response, went off into a rant, not because of the person asking the question, but instead, because of the 300+ Asperger's patients who responded to the question to tell her how to write ASPEGER'S characters, all while claiming their Asperger's was the SAME THING as Autism.

More then 2,000 forum posts were added to the thread, by these 300+ people, boldly spreading huge amounts of extremely inaccurate misinformation about what Autism is and is not, and helping to spread the urban myth that Aspergers is a type of Autism.

Sadly after taking 3 days to read every post on the thread, I finally reached the end to find that not even ONE of the more then 2,000 posts had given her ANY information about Autism.

My response is too long for one page, all pages are being linked to here:

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Autism Color and Fashion

You look like you just walked out of a history book . . . why do you dress like that?

All of my life I have had a close affinity with colors. My cloths in their day-glow, bright, neon, and popping colors, are the first thing people notice about me, and are always the start of every conversation any one has with me.

In my past 34 years of life, nearly every conversation has started with: “Why are you dressed like that?” or some variation of it. I have no explanation for why I wear the things I do. I started dressing like this at about 12 years old when I learned how to sew my own cloths and have dressed like this ever since.

Before the fire of 2006, my contact with humans was limited to seeing people in church on Sunday. So before 2006, I had no idea, that from Monday to Saturday women do not wear long flowing bright colored dresses. I had never seen a woman dress any differently that in “Sunday Dress” before. This revelation, shocked me.

When I try to explain this to people asking about my cloths they respond to say: “But didn’t you see people on TV?” uhm . . . no . . . for many years we did not have a TV. We did have a VCR to watch movies, but, when you consider the movies I watched: Labyrinth, 1776, Scrooge, Fiddler on the Roof. My Fair Lady, Sherlock Holmes, Pirates of the Caribbean, Oliver . . . you’ll understand how I was completely unaware of the fact that hoop skirts, trains, and huge long gowns are not what people wear anymore.

You see, I thought people DID dress just like they did on movies like My Fair Lady, and was no fully aware of the fact that people stopped dressing like I do, some 250 years ago.

My family lived completely isolated from contact with Americans. We had no TV. My parents dressed like that. My mom was a seamstress and had retracted every single dress worn by Ma, Mary, and Laura Ingalls from the Little House on the Prairie TV show and that was the ONLY thing she would wear. The ONLY people we ever had contact with was other Gypsy relatives who dressed just like my mom did, and members of the local LDS/Mormon church congregation, who ALSO only ever wore "prairie dresses".

The only ones of us who didn't wear gingham and calico prairie dresses, were the little girls who ALSO wore in addition to prairie dresses, the elaborate sequence "pageant dresses" which my mother also sewed.

When I was 5 years old my favorite dress to wear was a red hoop shirt. At 8 a pink ruffled hoop shirt made of 25 yards of fabric was what I wore every day. At ag 10, my most worn dress was a rhinestone encrusted purple damask ballgown. These were all dresses my mom designed and sewed and I was not given a choice in if I wanted to wear them or not.

From the 1970s until 2005, I had no reason to think that the rest of the world dressed any different, because I'd had no contact with any one outside of our clan and our church and the only movies I was allowed to watch were the ones which showed people dressing this way. Before 2005, I had never seen any one who DID NOT dress like this.

One of the problems with people classifying my cloths as "she has autism, that's why she dresses like an insane person" is the fact that they fail to realize, I dress exactly the same way as the 400+ adults I grew up with and this "historical costume" style of dressing, was me being perfectly normal and wearing exactly the same thing every one around me was wearing.

When people comment on the capes... again, this was normal every day wear. My mother had me wearing capes before I was even old enough to walk. There isn't a time in my life when I wasn't wearing capes.

I had no reason to think that the way our family, clan and church dressed, was "different" from what was seen as "normal" because, for our culture, this WAS normal.

It's actually quite hurtful that Americans are quick to bully me based on my clothes and say that my Autism is why I dress this way, when they are not considering the fact that EVERY ONE in the culture I grew up in dresses the same way I do.

I love history, but I’m afraid I’ve never studied anything beyond the time Napoleon and Hitler. My parents would not allow textbooks that taught any history after the 1940s.  I started out with ancient history and move upward through the thousands of years, I tried to study such things on my own, not sure why my mother had forbidden "modern history" but when I got to Napoleons evil acts followed by Hitler’s worse acts, I decided that I dislike modern history and did not study any part of history any newer than Hitler.

So, while I have a very good knowledge of what people wore from centuries BC until the 1930’s, I had no real idea of what people wore after the 1930’s and was not aware of the drastic change that had occurred.

But I fail to comprehend how the way I dress has anything to do with Autism, but people say it does.

Of course there are also people who say that I may have what they call "learned autism" and they say that it is possible every person (all 400+ of us) in my family may ALL be autistic, because Gypsy culture teaches us to hug no one, make no eye contact with no one, dress "funny", do not socialize with gentiles (Americans), avoid noise-music-dance-etc, and let every one have their own personal space... all that and the fact that we Gypsies become highly anxious around the violent, hate mongering gentiles who make a habit of beating us up.

So apparently: because we Gypsies have manners and morals, that means ALL Gypsies are autistic?

Because we Gypsies are terrified of the viscous, violent Americans who make a daily habit of invading our privacy and trespassing on our land, that means ALL us Gypsies therefor have Autism?

Because we Gypsies dress differently from the Americans, therefore ALL us Gypsies have Autism?

I don't get it, but that's what this psychologist guy said. He said our entire family, the whole clan, all 400+ of us, had Autism because he had never seen anything like us.

For the past 30 years, I have worn the huge skirts, the long gowns, the hooded capes, the monk-like habits, the kimonos, because that is what people in the history books wore and the history book were my only contact with people.

Like I said, before the bomb blew up my house in 2006, I only left the farm to go to church and I wasn’t aware of the fact that people wore very different cloths to church from what they wear the rest of the week. I just thought all women wore dresses and all men wore suits.

I think it is safe to say that I am suffering from extreme culture shock at learning that people dress very different;y from me, because I wasn’t aware that I was dressing any different than any one else, until I was suddenly forced to live in contact with humans after the fire of 2006.

More about the vandalism, harassment and how I became homeless can be found here: http://www.squidoo.com/OnBeingHomeless2


The section above was originally written in 2007.

A 2017 10th Anniversary update is coming soon and will appear in this section below.



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UPDATE: June 5, 2017
US Department of Justice, Civil Rights Division,
Joins FBI In Investigation of
Old Orchard Beach Town Hall and Police Department 
For Hate Crimes & Discrimination Done To
140+ Gypsies, Blacks, & LGBTQA+ Residents



Have Information?
Please Call FBI Agent Andy Drewer @ (207) 774-9322  

More info on what happened can be found HERE.